I’m back, and still continuing my habit of using song lyrics to title these collections of angst. Normally I take a while between posts because to be honest I can’t be fucked, but this time there was a reason (whether or not it was a good one is yet to be determined) I had to wait for it to get cold to get into the right mindset for this one. I’ll elaborate.
Anyone who knows me or at the very least have read my previous blog on disability know that I suffer from Ankylosing Spondylitis, it’s a condition with many facets the main one is joint pain, up until about a year ago that manifested itself in the form of moderate to severe back pain and some knee problems. That was until I finally got the diagnosis last year and started treatment, the treatment consists of injecting a TNF blocker into my system every fortnight things had been going well for most of the time since then my movements had become less stiff and the pain waned.
But about a month ago winter began, I was interested to see how even with the meds my body was going to cope with cold weather, I went into this with mindset that at the very least things couldn’t get any worse. How wrong I was, not only is the back pain still as bad as it ever was but my peripheral joints started to stiffen my elbows lock up my ankles will buckle if put under any strain from say crouching, and my right hand is now virtually useless( for those of you who know me and see that I always wrap a bandana around my left hand, it’s for warmth to prevent it from fucking up on me) and even my jaw has been known to refuse to open up all the way. To recap I can’t crouch, I can’t eat anything to big there are times when I can’t extend my arm and most frighteningly of all I’m losing dexterity.
Why am I writing this you may ask, it’s not like my previously humourous entries where I rant and verbally assault others, well for one I really need a good bitch session and when you spend 5 days out of the week on your own that’s hard to come by and have it being satisfying, but more importantly it probably gives the best insight into why i am the way I am and what’s going through my head most of the time.
Well with that out of the way I hope to bring you something a bit more light-hearted next time because whenever I talk about this insipid disease I die a little bit inside.
I’m out